I know that I've had a number of international Blood Clot Survivors featured but it would be interesting to see how many States have been actually represented...?
One thing is for sure there is a big country (and world) out there with a lot to see and experience. One of the states that I have not had the chance to visit yet is IOWA. Perhaps some day I will find my way there and get the opportunity to ride around in our CLOT BUSTER #StopTheClot polka-dots with this month's CLOT BUSTER Athlete of the Month - TODD ROBERTSON.
Again the magic of the internet and social media has been able to connect me with Todd so that this month we can share his story that is sure to make you reflect and inspire you to overcome the challenges of blood clots.
Please read on and enjoy...
What is you sport/activity of choice? Why do you
enjoy it?
Normally,
I would say that paddling and spending time on rivers whitewater canoeing,
kayaking and paddle boarding is my greatest passion activity and it’s also my
job as an instructor. That said, cycling is my main passion right now because
that is the vehicle I use for spreading blood clot awareness!
How did you get started in that sport?
I
discovered rivers 20 years ago when I was given a used canoe. Once I hit the
river, I was hooked for life. It later turned my new passion into a job as
Rivers Outreach Coordinator for the Iowa Department of Natural Resources and I
also became a certified Level 3 instructor. Teaching people how to paddle
efficiently and safely is an important job to me, especially teaching children.
As for cycling, I bought my first road bike 2 years ago and ride as much as I
can. I think riding RAGBRAI, the oldest and largest group ride in the world
will be a great way to spread awareness as I wear and rotate the “polka dot”
jersey and my own custom made Pulmonary Embolism Survivor jersey. I’d like to
see some of the Team Stop the Clot on RAGBRAI 2018!! Let’s have our own little
group of clot-busters riding together for a week.
What is the latest milestone you achieved or
plan to achieve?(Long bike ride, some race coming up or that you did)
My most
recent milestone reached was getting my certification to teach stand up paddle
boarding. It was no easy task. At 53 years old, Lake Superior really put me
through the meat grinder as the limits of my physical power was truly tested! The waves and swells were huge! But, I made
it. Other potential instructors in the brutal week long course were in their
early 20’s or younger! I was the old man in the group!
Tells about your clotting episode. Are you on blood thinners now? How long were
you out of commission?
Easter, a
time of resurrection, was my 90 days out.
My 3 month PE clotiversary. I
made it to 50 years of age before having a clot and finding out I have Factor 5
Leiden, the homozygous variety. Both of my parents had the mutated gene and
BOTH passed it on to me. How fun! My
first traumatic “bloodletting” injury came when I fell off of a canoe trailer,
suspended in midair by a big hook in my leg. I now know what it feels like to
be a hooked fish. After ER surgery, I developed a blood clot in my leg at the
site of the injury. They attributed it to the injury itself. Then a few months
later, another clot, this time a DVT. They then did a blood test and gave me
the F5L news. Anticoagulants for life. They say homozygotes have an 80%
increased chance of clotting abnormally over the non F5L person. Not sure why
they bother with that 20%. I mean if the weather forecast calls for an 80%
chance of rain, are you really thinking about that 20% chance you will stay
dry? No, you’re too busy trying to find the umbrella because you know you’re
going to get wet! I’m now on Xeralto, 20mg daily. So this year, my former “not
so bright” doctor took me off Xeralto 4 full days prior to my colonoscopy. That
was a mistake on his part. That long off Xerlato is not the way to bridge. For
3 full days I had no anticoagulant medication in my system. But he wasn’t the only one at fault. I had a
bad habit of missing doses here and there and taking X in the morning on an
empty stomach. That entire combination gave me a Pulmonary Embolism on January
17th, 2017. It was the size of pregnant earthworm (makes you
envision it, right?) and it slithered to the bottom of my right lung. I went to work the next day. I was weak, and
was told I looked like walking death, but I was very lucky. Now, 90+ days
later, my lung has healed 80% and I am back to normal. But being a F5L homozygite, I am constantly,
in the back of my mind, on clot watch. I
do look at all of this as a blessing. Maybe best thing to ever happen to me. It
has turned me into an “awareness raiser”.
A recent newspaper article and interview went nationwide and I heard
from over 600 survivors. I have started an Iowa based support group and
campaign with the support group being backed by two local hospitals, Mercy and
Methodist.
When were you able to get back into your
activity? How did it feel that first
time?
I was
able to start running and exercising within a month. I just did my first 20
mile bike ride last week to test my lung out. It felt awesome, although at the
end of a 28mph sprint, that spot where the clot had come to rest, showed signs
of soreness, reminding me that I still have some healing to do or could be
damaged permanently. I plan on riding all 400+ miles of RAGBRAI this July. I
will also be back to instructing in just a few weeks.
What is your
favorite piece of gear for your favorite activity? (Bike brand, running shoes,
perhaps a running singlet or the Clot Buster's Running Polka-Dot Technical Shirt...)
My
favorite gear is my “no brainer” item: my rescue lifejacket when on water. I
also have my Scott Speedster road bike, my Boardworks touring and racing SUP
and I love my clot-busting running shirt, bike jersey and tri jersey! I wear
the dots every chance I get and when I rotate out on the bike, I wear my PE
Survivor jersey! I need a polka-dot clot-busting lifejacket!
How much are you getting out doing your sport? (Every day you do some training, 2, 3, 4
times per week)
I stay
active. I paddle about 1000 miles a year and will bike as much as possible,
including commuting to work on many days. I also have signed up for quite a few
5 and 10ks. Next up: The Drake Relays Road Races!
What is your favorite food? Either generally or after a workout. For me there is nothing better than a
Chipotle Burrito...
I am
addicted to multi meat pizza and chocolate milk. Also love my ribeye’s on the
grill. I’m an Iowa native…and that means I’m a homegrown corn, meat and
potatoes boy.
If you could go some place to visit and explore,
where would like to go?
Our many
National Parks. I love the NPS. I want to go to Yosemite and Yellowstone and
bike and paddle in both locations!
What would like
to say to someone who is going through a clotting episode, perhaps very similar
to yours? How can people return to do what they enjoy? Tells about your concerns and what you
look out after as you got back.
The
NUMBER ONE thing to remember is: You need to be your own advocate. Not all
doctors finished at the top of their class and not all have a grasp on blood
clots. Find a good team if possible, especially if you have suffered a PE. The
team should include at least one visit with a cardiologist, a pulmonologist and
a hematologist. Having a good GP/MD for
regular visits is a plus. Remember, you can “fire” any doctor you wish if you
are not getting your questions answered or if you feel you are being “blown off”.
We all suffer post traumatic shock and we need emotional support. Also, give
yourself time to heal. We as people are like snowflakes….no two people are the
same. Recovery time can range from weeks to years and everyone is going through
something different. It does not have to be a death sentence and clots and
clotting conditions can be managed. Make
raising awareness a goal. Blood clots are NOT talked about like they should be.
We need to spread the word. By doing this, we can help ourselves and help others.
We got this!
And if
you have not been tested for a genetic clotting disorder and have suffered
clots previously, do so, especially if there is no reason known of why you
clotted abnormally. Again, be your own
advocate, get educated and spread the word!
Also while you are reading this check out this video Todd had the opportunity to participate to discuss the dangers of blood clots and the awareness needed to be alert in combating this potentially silent killer...
Sounds like Todd and I could hang out for sure!
For many years now I've been wondering about riding RAGBRAI as one of the most epic and famous state crossing routes in the United States. I am not sure I can keep up with Todd during this challenge but for sure I think that getting a team of people in CLOT BUSTER #StopTheClot polka-dots would be FANTASTIC!!! Perhaps in 2018 we will have to make this happen.
Also, I will need to get some pointers from Todd to improve my Kayaking skills... not to mention how I would love to get into doing more Stand Up Paddling... For sure sounds like Iowa will be on my short list of states to visit next... Specially now that I know I have tour guide in #StopTheClot polka-dots.
THANK YOU TODD for your willingness to share your story. YOU ARE MAKING A DIFFERENCE!
Thank you for reading,
The Clot Buster
